Islands in the Stream: When Caregiving Leaves You Stranded

HomeHealthIslands in the Stream: When Caregiving Leaves You Stranded

By David Patterson

Dolly Parton spent a lifetime giving to others. But behind the rhinestones, sold-out concerts and larger-than-life personality was another role she took just as seriously: wife and caregiver.

Dolly and husband Carl Dean
Dolly and husband Carl Dean

Parton was married to Carl Dean for nearly sixty years. While she lived much of her life in the spotlight, Carl preferred privacy and a quiet life away from the cameras. In his final years, as his health declined, Dolly spent more time caring for him and less time focusing on herself.

After his death in March 2025, Parton openly acknowledged something many family caregivers understand: When someone you love needs you, it is easy to put your own needs on the back burner.

That is where caregiving can become complicated. What begins as helping with a doctor’s appointment or picking up a prescription can gradually become a full-time responsibility involving medications, meals, finances, transportation, household duties and emotional support.

And somewhere along the way, the caregiver can disappear.

Caregiving expert Neal Shah has described the experience as a combination of chronic stress, physical exhaustion and emotional heartbreak. That combination is precisely why caregivers need to recognize that taking care of themselves isn’t selfish, it is necessary.

Toula Wootan, founder of the Caregiver Coalition of Northeast Florida
Toula Wootan, founder of the Caregiver Coalition of Northeast Florida

Toula Wootan, founder of the Caregiver Coalition of Northeast Florida, has spent years advocating for family caregivers and reminding them that they don’t have to do everything alone. Her message is simple: Ask for help. Build a support system. Give yourself permission to step away when you need to recharge.

For caregivers, that can be easier said than done.

Joanne Hickox, founder of Jacksonville’s Seniors on a Mission, believes older adults should remain connected to purpose, people and activities that make life meaningful. That philosophy is especially important for caregivers, who can become so focused on another person’s needs that they lose touch with their own interests and friendships.

So, what can we learn from Dolly?

Love deeply. Show up. Be there when someone needs you.

Take the walk. Meet the friend for lunch. Go to the exercise class. Accept the offer when someone says, “Let me give you a break.” Ask your family for help before you’re exhausted. Find respite care. Join a caregiver support group and hang in there.

10 Caregiver Resources

  1. ElderSource — The best place to start for Northeast Florida caregivers. Get connected to respite care, support programs, caregiver education, transportation, meals, Medicare counseling and other community resources. 888-242-4464, myeldersource.org
  2. Caregiver Coalition of Northeast Florida — Offers caregiver education, workshops, support resources and connections to organizations that can help families navigate the challenges of caregiving. caregivercoalition.org
  3. Alzheimer’s Association – Central & North Florida Chapter — Provides dementia education, caregiver support groups, care consultations and a 24/7 Helpline for families dealing with Alzheimer’s and other dementias. 800-272-3900, alz.org/centralflorida
  4. Aging True — Provides programs and services designed to help older adults remain independent at home, while giving family caregivers additional support. 904-807-1203, agingtrue.org
  5. Community Hospice & Palliative Care — Offers hospice, palliative care and family support for people facing serious or life-limiting illnesses. 866-253-6681, communityhospice.com
  6. Jacksonville Senior Services — Connects Jacksonville-area older adults and their caregivers with senior centers, transportation, companion services and other programs that support independent living. 904-630-2489, jacksonville.gov/senior-services
  7. Baptist Health AgeWell Center for Senior Health — Provides specialized care for older adults, including care coordination, medication management, rehabilitation and other services for complex health needs. 904-202-4243
  8. The Arc Jacksonville — Provides specialized support and resources for adults with intellectual and developmental disabilities who are aging, including assistance for families and caregivers. 904-355-0155, arcjacksonville.org
  9. Jacksonville Area Legal Aid — Provides legal assistance for qualifying individuals and families, including help with issues involving housing, benefits, guardianship and elder law. 904-356-8371, jaxlegalaid.org
  10. Northeast Florida Area Agencies on Aging & Councils on Aging — Local aging organizations can connect caregivers with meals, transportation, senior programs, in-home services and other community assistance. Start with ElderSource for referrals in your county. 888-242-4464, myeldersource.org

It doesn’t matter if you need a few hours of respite, help navigating Medicare, transportation for a parent or someone who understands what you’re going through, Northeast Florida has resources for family caregivers.

This is a partial list of services in our area. For additional resources contact ElderSource’s Elder Helpline: 888-242-4464.

spot_img
spot_img
spot_img
spot_img
spot_img

Must Read